Friday, November 27, 2009

Good news and bad news?

The good news is I've been discharged from physio. Apparently I'm doing so well they don't need to see me anymore. OK, I insist on being carried most of the time, all 17kgs of me.. but when mom asked if that was related to my hypotonia and they said no... well, I wanted to shout out! I have no excuses now... and guess I'll be walking more than usual :(

Ok, this is good and bad news. Apparently I won't need 1:1 support at school, I'm not complex enough? But the school I'm due to start at are worrying because they already have 3 kids with special needs in the Reception year. Not really my problem, because I was accepted into the school, so I belong there and will get all the support I deserve. I may need a bit more funding though so the CDT and mommy and papa are going to fight for that. Nothing's ever simple in my world.. all I want to do is get on with my life, these little obstacles will only make me stronger though.. so bring it on!

Monday, November 09, 2009


I was referred to ENT for my 'enlarged adenoids'. My speech is a bit nasal so the speech therapist wanted to have them checked out. Well, as it turns out I have something up with my palate, not my adenoids! I'm being referred to a plastic surgeon at GOSH. I've been under various speech therapists since I was born, not sure why this wasn't noticed before but will try find out. Surely my palate is the first thing they should've checked? I'm no expert.. but surely? I don't really fancy more surgery so hopefully it won't come to that.

Friday, November 06, 2009

This time, three years ago

.. I was weaned off my feeding tube. I used to have 4 bolus feeds per day. I went to the Austrian clinic and never looked back. My development improved so much when I started eating. The best bit though? I got to taste and experience the textures of food. I eat everything, so much so that a lady from the council interviewed mommy to find out her secret(s). There are no secrets, I never ate before so I'm just making up for lost time.

Monday, November 02, 2009

I'm a pirate!

Papa and I went to India and Tara's birthday party. It fell on halloween so we had to dress up. I loved being a pirate and loved play fighting with my sword. Don't I look smart?