Tuesday, June 27, 2006


Mommy managed to get me a quick appointment before the school hols started. Yay!!!

Monday, June 26, 2006


Mommy's found a manny called Stuart to look after me. He's come highly recommended, he's looked after 2 other boys for the past 8 years and he's even worked at a school for children with special needs. Everyone speaks very highly of him and the fact that he comes recommended is a huge bonus. Mommy going to spend most days this week with him to make doubly sure though.

Thursday, June 22, 2006

Mommy sacks my nanny

Mommy has to go back to work on the 26th. She's going back morning's only so she can spend the afternoon's with me. yay!!

the nanny came to learn how to feed me. mommy showed her everything and told her how much i hated to eat. i was laying on my playmat and the nanny gave me a bit of a sweet. it fell to the back of my throat and i choked. Mommy put me on her knees and slapped my back really hard. i was so scared, i couldn't breathe at first, but then i had a vomit and everything was ok. Mommy sacked the nanny that evening, she didn't feel right about leaving me with her... she's had to take next week off as hols to find someone else to take care of me. It's only for 5 hours in the morning, really hope they find someone nice.. don't really fancy choking like that again.

Wednesday, June 21, 2006

Busy day today

I had my feeding group this morning, then hydroptherapy, then mommy had to take me to the doctor's, we needed to get more supplies for my feeding tubes. It seemed like non-stop. I'm very tired and just want to sleep.

Tuesday, June 20, 2006

Hannah's birthday

It's my cousin Hannah's birthday today, she shares her birthday with her dad. She lives in Langebaan. I met her for the first time in april. She's great fun and made me giggle a lot, she used to pull funny faces at me. She's also a really great big sister to erin, i hope to see her again next year when we all go back to south africa for a visit. Happy birthday Hannah!!


Had my last session today for a while. :-(
They close for summer holidays.


Went to opthamologist at great ormond street hospital today. They are worried about my blocked tear duct. they said it should've corrected itself by now. when i have a general anaesthetic when i get a gastrostomy they're going to look and check that everything's propertly formed. It'll just take 5 minutes. My vision seems fine though which is good. I really hope everything's ok with my tear duct though, really don't fancy another operation.

Monday, June 19, 2006


I'm still working on my crawling, really don't like that position much. Mommy has to push me more with that, but i'm now putting my arms out when Katherine rolls me on the ball, i never used to do that so i'm really pleased! I'm also sitting really well now too and reaching for toys more.

Saturday, June 17, 2006

I have my first party!

It's not my birthday yet, we'll be in italy for that so mommy wanted to have a party with all her friends and the people who care about me. It was such good fun. We had a braai and mommy even baked me a chocolate cake.

She wasn't sure how to put a 'one' on it, but suzie who lives in new zealand had a great idea for her. She made a template out of paper and sprinkled icing sugar around it. It worked and was so easy to do! Thanks Suzie! I got to try a tiny bit of cake but i spat most of it out. I got so many presents, i really got spoilt. Tara and India came, it was really good to see them again.

Thursday, June 15, 2006

Weighed at the doctors

Mommy takes me to get weighed every 2 weeks. That's if we're not on holiday or don't have appointments. i weigh 9.9kg's today! That's a really good weight. I'm quite tall for my age though and think i take after the potzas side with that!

Wednesday, June 14, 2006


I had my first hydrotherapy session today. Katherine, my physiotherapist organised it. We went straight after feeding class. Daddy took me cos he's the one who swims with me on saturday so he thought it would be important to see what he could do with me at the swimming sessions. It was quite hard work, not the same as my saturday fun swims but i still enjoyed being in the water so can't really complain.

Tuesday, June 13, 2006


I had reflexology again today. It was really nice, i had a bit of a cough so mommy was shown what areas of my foot to massage to help my chest. the palace is closing soon for a few months for the summer holidays so i won't be having alternative therapies for a little while. But it's ok, i think we could all do with a bit of a break... I'll start them again in september. There's plenty for me to be getting on with in the meantime.

Monday, June 12, 2006


I had physio again today. We have to work on my crawling. Mommy has to make me lie over her legs so i'm putting weight on my arms. i HATE this excercise and always try to roll out of it. This has been the hardest one for mommy to do so far. It's all to get me to crawl though so mommy knows she has to do it, but i certainly won't make it easy for her!

Friday, June 09, 2006

Nonna and Nonno come to visit

I love seeing them, they give me so much love and attention. Nonna is impressed with how much i've changed and grown. She plays with me a lot. Mommy jokes that we're nearly the same size, i look much bigger when nonna's holding me cos she's so little! They took me for a walk to the shops in my buggie.