Friday, November 23, 2007

I love books

Thursday, November 22, 2007

Early christmas present

We're going to south africa for christmas so i got one of my presents early.. who's complaining? I've still got all of santa's presents to look forward to anyway...

I've got a hobby horse. I love it, beats walking around with mom's rain stick between my legs, or the broom. I've also got a motorbike! it's red and looks rather snazzy. I can push myself backwards but haven't worked out how to push myself forwards. I just shout 'oi' and mom or dad will push me at great speed down the passage. it's great fun.

Wednesday, November 21, 2007

I'm sneaky

Mom was washing the dishes and i sneaked into the kitchen and took the milk out the fridge, unscrewed the lid and poured the entire contents on the floor. It was great fun, sploshed around in it, drew in it... then mom had to come and ruin my fun by cleaning it all up.. :-(

Tuesday, November 20, 2007

Understanding and speech

My understanding is incredible. I understand everything mom says. I've been a bit of a snot bucket lately, mom told me to go and get some toilet paper to wipe my nose, which is what i did. I couldn't decide how much i needed though... i figured a lot of snot = a lot of loo paper!

My speech is coming along too. I now say 'up' everytime i want to be lifted up, which is often! I can point at photos and say 'mama' and 'dada', i say 'hallo' to everyone i see, also wave and say 'bye'. I say 'nanana' for banana. When i do things that are naughty and mom catches me i say 'oh no'! I say 'yeah' and 'no' with meaning too.

I love talking on the phone 'chatter, chatter, chatter... hahahahahah, chatter, chatter, chatter.. hahahahaha!'

Monday, November 19, 2007

Cough cough splutter

I've been sick for over a week now. Mom was ill first and she gave it to me, thanks Mom! I haven't been to nursery school for over a week.. hope to go tomorrow. I'm getting cabin fever.

Friday, November 16, 2007

Aunty Elisa came to stay

It was wonderful to see her again. She loves me a lot and i love her too. I was still quite sick though but i had my moments of feeling ok. She's given me a christmas present, can't wait to see what it is.. mom said i have to wait until christams day. boo!

Thursday, November 08, 2007

Parents Day

Mom organised a parents day today. 18 families came to meet the professor. Their children were all tube fed. Unfortunately I got there late because i was at nursery so didn't get a chance to meet everyone. It was a good day though and i think there'll be another one in March. All the families came because they're struggling to wean their children off the tube or they wanted some advice. Everyone left with a smile on their face and with hope and good advice, what more could you ask?

Here's a picture of the professor on the left, and the lovely Jean from the Palace who let mom have the whole place for free. Thank you Jean!

Wednesday, November 07, 2007

The professor lectures at Great Ormond Street

I saw the professor today, she's the one who helped me eat orally. I also saw all my old therapists and paediatricians, right from birth up until now. They all said i was looking really well (which i am). I spent most of the time out of the lecture theatre, it was really quiet in there and i was talking all the time so dad had to take me out.

Someone told my story, about how i was tube fed and then went to Austria and started eating orally. Then the professor talked, she didn't have much time but what she said made an impact.. the top surgeon at Great Ormond Street Hospital is going to do a trial, he's going to send 3 children from here to Graz, Austria to be weaned. If it's successful (which it will be), they will hopefully work in collaboration with the professor. Wouldn't that be good?!

Tuesday, November 06, 2007


I'm sitting at nursery minding my own business, drinking some milk through a straw.. from those little cartons we get... mom comes to collect me and starts jumping up and down with excitement. what's all the fuss about? i've been drinking through a straw for a while now but mom didn't know.. geees. the funny thing is i drink more now... wonder why that is? mom's now on a straw mission to find healthy drinks for me to enjoy. she's had some great suggestions from her friends at heartline.. can't wait to try them out.