Sunday, December 31, 2006

Granny Stella

I just thought i'd attach this picture of Granny Stella on Christmas day. I think she looks very pretty. I'm hopefully seeing her next year some time. Thanks for the lovely christmas presents Granny.

Eating for England

I've stopped taking high calorie milk. Even though i lost weight when i was sick mommy and daddy decided to see what would happen if they stopped it. Well, i'm eating much bigger quantities now. I'm having a bowl and a half of porridge for breakfast, i'm having veggies for lunch. I had fish the other night which i loved. I'm eating fruit pots after every meal for dessert and i'm also having sliced banana for snacks. I even had my first pasta dish last night, but they blended it a bit so i could chew it better. I managed fine. I love food! Daddy's gone to buy me some fillet steak to try. I'm on iron supplements but if i like red meat i can come off those. hold thumbs.

Saturday, December 30, 2006

This is for Rebecca

I'd love to tell you all about Austria. If you want to contact me please go to my profile and send me an email.

Friday, December 29, 2006

Happy Heart Day to me!

A year ago today i had my open heart surgery to correct my ASD and VSD. I can't believe a year's gone by, but to be honest with you i don't really remember much about the surgery.

I thought i'd attach a pic of how i was back then, pre-surgery. Just so you can see how far i've come! I didn't have a tube in when the pic was taken though... but my cheeks say it all.

Wednesday, December 27, 2006

Appetite's back

I finally feel like eating again. I had 2 bowls of porridge for lunch, then had carrots and potatoes for dinner followed by 2 fruit pots! I'm sure the weight i lost will be back on in no time.

Tuesday, December 26, 2006

Bo(ck)sing day

Today was a good day. Mommy and i left hospital early... as soon as the birds started singing. We had leftover turkey, roast potatoes and beans for lunch. I ate some soft bread, the doctor said everything i eat should be dry. I chewed it really well, i enjoyed it. everyone got a tad over-excited seeing me eat. but it's been a while, so i guess i can't blame them.

Nonna, nonno and elisa left today for italy. I feel really sad. it's been a funny time. I've just wanted mommy. i think hospital threw me a bit. i'm tired. I had fun with them though.. i just haven't been myself.

Mommy spoke to lizzy today. She's in india with my good friends.. tara and india. They're having a wonderful time in the sun. lucky b*ggers. i miss them. tara and india will be able to tell me all about their adventures when they get back. can't wait!


Hi, well mommy and i spent the night at hospital. They re-hydrated me. I've got a runny tummy cos of the antibiotics i'm on for my pneumonia. Hopefully when that's settled down i'll start eating again. I'm just drinking lots of water with Dioralyte in it. Doc said i mustn't eat anything for the next 24-48 hours and i'm not allowed any milk. I've lost lots of weight but i'll put it on again when i start eating. Silly mommy and daddy trying to get me to drink milk. that was the wrong thing to do!

Now i'm going to go and enjoy all the brilliant presents i got from Father Christmas.

Monday, December 25, 2006

Buon Natale!

Happy Christmas, Buon Natale everyone!

I'm drinking more milk now. Mommy wants me to drink even more though. If i can't manage it today she'll take me to A&E.

Here's a pic of me near the tree. Mommy bought me this santa outfit that's about 10 sizes too small. I feel like a right plonker in it, but mommy insisted i wear it. (tut).

Sunday, December 24, 2006

Kai and Maja's Christening

My cousins Kai and Maja were christened today. Doesn't Maja look pretty in her dress, her granny made it for her. I still haven't met Maja and Kai, hope i get a chance to this year. Kai looks just like his daddy, my uncle Glenn.

Christmas Eve

Everyone had a really nice dinner, except me. I'm not eating. I'm losing a lot of weight. If things don't improve soon mommy's taking me to the hospital. I'm drinking though, so that's good. I've only been wanting to drink water in the day time, milk at night, but i need to drink more milk in the day, to get the calories and nutrition.

Will see how i go.

Friday, December 22, 2006

Going home today!

I'm going home today. I had pneumonia in the end. I had a lot of things apparently which all mean the same thing? I think everyone should try and speak the same language. It can get rather confusing. I hate hospital, glad to be leaving. It's good timing cos nonna and nonno arrive today from Milan. I'm still not eating much. I'm drinking lots of water though. The reason i've had to stay in a bit longer is cos i was still needing a bit of oxygen at night. in the day i was managing fine, but at night my sats (amount of oxygen in my blood) were dropping. They usually do when you sleep, but mine were dropping to 89%, the doctors wanted them to sit at 92% at least.

My old SALT and dietician came to see me. They've given me iron supplements and a multi-vitamin to take. My old SALT didn't ask about Austria at all. Find that really odd. She knew how i struggled to eat, you'd think she'd wanna know how it all worked? Oh well.

Wednesday, December 20, 2006

Arsenal vs. Inter

A few players from Arsenal visited us today at the hospital. They visit every year. They gave me some presents and a scarf. Daddy's made me give the scarf to Jack. He's the other little boy that Stuart looks after, he supports arsenal. I'm an inter milan supporter apparently. I don't know what all the fuss is about. Mommy said i should be allowed to choose which football team i support. Daddy said 'no way!'. Mommy was just winding him up i think. It was nice to meet you guys but that's as far as it goes. sorry.

Mommy was hoping Fredrik Ljungberg would be there. he wasn't.

Sunday, December 17, 2006


Hi everyone. I'm in hospital, been in since friday. i've hardly slept. I'm on oxygen 24/7 cos it's hit me really hard. I'm being nebulized with steroids (sounds like something from star wars), at first every hour, then every 2 hours, now it's every 3 hours. mommy asked that they take care when they do it, cos it always wakes me up. So far i haven't slept through one of them. I'm like a zombie.

The doctor's mentioned the ng tube, to help me feed. Mommy and daddy said under no circumstances are they to put one in. YAY!! they've been syringing milk into me instead. that way i don't have to work so hard. but that was then, now i'm drinking from a bottle again but don't fancy eating. I've lost lots of weight. But it'll come back.

As soon as i'm coping without oxygen i'll be home. can't wait. I'm sick of the ward, it's noisy, bright lights and they wouldn't even let mommy or daddy take me for a walk. I just wanted a change of scene, but cos i'm on oxygen i have to stay where i am. (tut).

will blog again when i'm home for good.

Friday, December 15, 2006

Still sick

I haven't been well at all. I'm going to the doctor this morning. I'm hardly sleeping or eating, i'm coughing a lot.

I'll blog again when i'm feeling better.

Tuesday, December 12, 2006

Snot bucket

I'm sick. I feel dreadful. I was up at 4am with a temperature, coughing and sneezing. Mommy gave me some calpol and i got to sleep just as her alarm was going off to go to work.

Mommy came home early from work today, she had a half day. We had a nice afternoon sleep together. i still feel awful so am going to have a nice bath and climb into bed.

Monday, December 11, 2006

Avocado & banana

Mommy told stuart to give me avo for lunch today. I loved it, i ate a whole big one.. all to myself. I even finished off my meal with some fruit puree. I prefer sweeter things to savoury things... i do eat savoury stuff, but i'm not a huge fan.. yet.

I've just had some sliced banana for a snack. Mommy and i shared one, so i had about half. Mommy didn't mash it.. it was easy to chew though. I really liked it.. should keep me going until dinner time.

Saturday, December 09, 2006

Elf for a day

copy and paste the link. you need sound!

Scrambled eggs

I had scrambled eggs and toast for breakfast this morning. I only had one bite of toast but chewed it really well. The rest i threw on the floor, i love seeing mommy clean up after me. I quite liked the eggs, but they're a bit weird. I really fancied porridge so i guzzled down a whole bowl of that.. the egg didn't full me up enough.

I haven't had custard for a day now. I know mommy and daddy are trying to get me off it.. they don't want me to form bad food habits, bit irritating cos i love that custard. Maybe if i shout louder tonight they'll give it to me. Let's see.

Friday, December 08, 2006

Physio & Speech

I had my last physio and speech session for the year. Katherine made me do some 'cruising'. She said i'll wanna walk when i want to carry a toy in my hand. At the moment i just drop them so not sure when that'll be. I'm in no rush to walk, crawling's getting me around just fine at the moment. I love cruising furniture though. I even stood on my own last night for about 2 seconds, i didn't even realise i wasn't holding on to something... how's that for balance?

Tim really wanted to hear my babbling, i babbled a bit but not as much as i do at home. I was more interested in showing tim and katherine my moves in front of the mirror. That's where i practise my facial expressions for flirting, i look really cute when i raise my eyebrows, it works every time!

Thursday, December 07, 2006


I got weighed today. I'm nearly back at the weight i was before we went to Austria. I'm doing really well with my eating and drinking, so that's really good and positive! wooopeeeee!!

CDT xmas party

I went to my cdt xmas party this afternoon. It was really good fun. Katherine played with me lots and even took me into the sensory room. My paed saw me for the first time since Austria, she said i'm looking really well. I was really tired though and got a bit irritable. Father Christmas gave me a really beautiful pop-up book, thank you Father Christmas!

Mommy and i got the bus home. She made me leek, sweet potato and carrot for dinner. She didn't blend it for so long though so it had lumps in it. I really enjoyed it. I like lumps, i handle them fine. It was really tasty. I was just so tired though and my eyes were closing while i was eating so i went to sleep.

Wednesday, December 06, 2006

Makaton & Lumps

Mommy was at a course all day learning Makaton. She must've enjoyed it cos when she came home she started signing straight away. She signed 'drink', 'food', 'come here', 'sleep' amongst others. It means nothing to me right now but sure i'll get the hang of it.

I had sweet potato for dinner. Mommy put bits of bread in it (?) to see how i'd cope with lumps and if i'd chew. Well, it was easy, i chewed easily and really enjoyed it. It fulled my tummy up a bit quicker though, think it was cos of the bread. i think i'm ready to move onto lumps, not big hard ones... smallish soft ones.

Saturday, December 02, 2006


I went swimming today for the first time in ages. I've been away a lot so haven't had a chance. I'm wearing a little wetsuit now to keep me warm. I loved kicking in the water. Everyone said how much i'd grown and noticed the tube was gone, it's really nice cos every time i'd come back from a swim a new tube would have to be put in cos the tape would get wet and lose it's grip. There are only a couple of lessons left then i stop until january.

Friday, December 01, 2006

You can't say Macleans without smiling..!

Mommy's started brushing my teeth. There's no way i would have let her when i was tube fed, but now i'm fine with it. I really like it when she does it, she massages my gums and the toothpaste tastes like bubble gum.

I'm changing a lot. I don't sleep as much as i used to when i was tube fed. I 'shout' for my food now whereas before i knew i'd get it and was never really hungry enough anyway. I'm eating porridge for breakfast, then i have a taste of something new for lunch... followed by a large jar of vanilla or chocolate custard. At about 3 i have another jar of custard, then for dinner mommy makes me something. I don't always like it though (no offence), so i have my custard again. I'm getting all my nutrients from my milk. It's special milk that has everything i need. I'm showing more interest in other flavours... but just taking it slow, can't expect to run before i can walk! Once i've managed a whole bowl of another flavour i think the custard may fall by the wayside... so i'll enjoy it while it lasts. It reminds me of Austria and I liked Austria. I hope they take me back there some day.